In spite of all the established advances of contemporary medicine, certain people are drawn to non-traditional or “natural” remedies and practices. Many of these are not dangerous. As one cancer specialist noted recently, people undergoing cancer treatment will frequently try meditation or vitamins as well. When such a change is in addition to, and not in place of, scientifically-backed treatment, this is typically not a concern. If it lessens distress, it can help.
But the proliferation of online health influencers presents problems that authorities and oversight bodies in many countries have not fully understood. A recent inquiry into one such business offering membership and advice to expectant mothers has exposed dozens cases of third-trimester fetal deaths or other serious harm connected to mothers or birth attendants linked with it. While the company is headquartered in North Carolina, its reach is global.
“For whole populations, going through labour and birth without professional support is associated with higher levels of risk for mother and baby,” according to a expert of midwifery.
Giving birth without medical assistance, known as free birth, is permitted in nations including the UK and US. The potential dangers are not well understood due to a lack of data. Childbirth can be a daunting prospect, and high-quality care is far from guaranteed. In England, a shocking recently published report found two-thirds of maternity units to be unsafe or in need of improvement.
Criticisms of medical systems and specific, persistent issues with maternity care are in many cases justified. A significant number of the women interviewed for the investigation had previously experienced distressing births.
But while mistrust of institutions may be rooted in experience, it has also proved to be a fertile ground for other influencers looking for converts to their unorthodox methods and DIY ethos. During the pandemic, a “well-being” industry ostensibly focused on healthy living was involved in disseminating falsehoods about vaccines and fuelling paranoia about government advice.
Worry is rising that such ideas are gaining more general purchase. One paper given at a cancer conference focused on misinformation, which it said had “significantly deteriorated in the past decade”. This investigation shows that behind the image of an rebellious community lies an enterprise that trains women as social media influencers as well as birth attendants. The group does not claim to be a qualified medical provider.
There is no going back to a time when doctors were presumed to know best. Vast quantities of scientific research are published online and many people use these to positive effect. But there is also a critical necessity for safeguards from poor advice. It is well known that the automated systems used by tech companies reward increasingly sensational content.
In the UK, improvements to childbirth care cannot come soon enough. They should include the option of home birth and the availability of clear information to empower women in making decisions. Policymakers and organizations including the World Health Organization should also develop plans for the online information landscape so that evidence-based healthcare is not compromised.